https://froodl.com/the-psychosocial-burden-of-drug-resistant-epilepsy-a-call-for-better-therapies The Psychosocial Burden of Drug-Resistant Epilepsy: A Call for Better Therapies When a neurologist adjusts an epilepsy medication, they typically track one primary metric: seizure frequency. Did the seizures decrease? By how much? How many per month compared to last visit? These are the numbers that drive clinical decisions, and for good reason: seizure control is the immediate, measurable goal of treatment. But for someone living with refractory epilepsy, seizure frequency is only one measure of how the condition is affecting their life. It doesn't capture the fear of losing consciousness in public. It doesn't reflect the grief that comes with surrendering a driver's license. It says nothing about the job a person left because unpredictable seizures made it impossible to stay. And it tells you very little about the depression, the social withdrawal, or the relationships that quietly fell apart under the weight of a condition nobody around them fully understood. #Epilepsy #Drug_Resistant_Epilepsy #Neurologist